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Special Issue / Schwerpunkt| Volume 123, P41-45, June 2017

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Moving towards shared decision making in the physician-patient encounter in France: State of the art and future prospects

      Abstract

      In this paper we present the evolution of shared decision making since the mid-nineties in terms of legislation, official statements and guidelines. We outline the goals and declarations of the French Ministry of Health and the French National Authority for Health, for whom informing patients and shared decision-making are central concerns. Finally, we discuss research projects and clinical initiatives in shared decision-making in France and provide a general overview of progress and barriers to progress.

      Zusammenfassung

      In diesem Beitrag stellen wir die Entwicklung der partizipativen Entscheidungsfindung (Shared Decision Making) seit Mitte der 1990er-Jahre in Bezug auf die französische Gesetzgebung sowie offizielle Erklärungen und Leitlinien vor. Wir präsentieren die Ziele und Erklärungen des französischen Gesundheitsministeriums und der französischen Nationalen Gesundheitsbehörde „Haute Autorité de Santé“ (HAS). Für beide sind Patienteninformation und partizipative Entscheidungsfindung wichtige Anliegen. Schließlich diskutieren wir Forschungsprojekte und klinische Initiativen zur partizipativen Entscheidungsfindung in Frankreich und geben einen allgemeinen Überblick über die weiteren Entwicklungen und die dabei zu überwindenden Hürden.

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      References

      1. OECD. Health Care Systems: Efficiency and Policy Settings, OECD Publishing. http://dx.doi.org/10.1787/9789264094901-en. Annex 4.A.1. Accessed April 2017.

      2. OECD. Health statistics 2016. http://www.oecd.org/fr/els/systemes-sante/base-donnees-sante.htm. Accessed April 2017.

      3. WHO Health Statistics 2016. Monitoring health for the sustainable development goals. WHO, 2016. Accessed April 2017.

        • Barbot J.
        Agir sur les essais thérapeutiques. L’expérience des associations de lutte contre le sida en France.
        Revue Epidemiol Santé Publique. 1998(a); 46: 305-315
        • Barbot J.
        Science, marché et compassion.
        L’intervention des associations de lutte contre le sida dans la circulation des nouvelles molécules. Sciences Sociales et Santé. 1998(b); 16: 67-95
        • Fillion E.
        How is medical decision-making shared? The case of haemophilia patients and doctors: the aftermath of the infected blood affair in France.
        Health Expect. 2003; 3: 228-241
      4. Ligue Nationale Contre le Cancer. Les malades prennent la parole. Livre Blanc des Premiers Etats Généraux des malades du cancer. Ed Ramsay; 1998.

      5. Law of 20 December 1988 pertaining to the protection of biomedical research volunteers. (Loi Huriet), Loi 88-1138 du 20 décembre 1988. Journal Officiel, 1988.

      6. Medical Deontological Code. Article 35, alinéa 1er (http://www.legifrance.gouv.fr). Code de Déontologie Médicale, 1995.

      7. Hospitalised Patient Charter. Annexe de la circulaire ministérielle n°95-22 du 6 mai 1995 relative aux droits des patients hospitalisés. Charte du patient hospitalisé, 1995.

      8. 25 février 1997 (Arrêt Hedreul), Gazette du Palais, 27-29 avril 1997, 22-28.

      9. 29 mai 1951, Bull.civ I, n°162.

      10. Law pertaining to patient rights and healthcare quality. Loi 2002-303 relative aux Droits des malades et à la qualité du système de santé, (http://www.sante.gouv.fr), 2002.

      11. Hospital, Patients, Health and Territories Law. Law n°2009-879 (http://www.sante.gouv.fr), 2009.

      12. Hospital, Patients, Health and Territories Law. Law n°2009-879 (http://www.sante.gouv.fr), 2016.

      13. French National Authority for Health (Haute Autorité de Santé). Elaboration d’un document d’information écrit à l’intention des patients et des usagers du système de santé. Guide méthodologique. Paris: Haute Autorité en Santé, 2005.

      14. Report by the ANAES. Informing patients: guidelines for physicians. Information des patients : Recommandations destinées aux médecins. Direction de l’Accréditation, 2000.

        • Coulter A.
        • Entwistle V.
        • Gilbert D.
        Informing patients: an assessment of the quality of patient information materials.
        King's fund, London1998
      15. French National Authority for Health (Haute Autorité de Santé). Patients and professionals deciding together – concept, patient decision aids and shared decision-making. Paris: Haute Autorité en Santé, 2013.

        • Protiere C.
        • Viens P.
        • Genre D.
        • Cowen D.
        • Camerlo J.
        • Gravis G.
        • et al.
        Patient participation in medical decision-making: a French study in adjuvant radio-chemotherapy for early breast cancer.
        Ann Oncol. 2000; 11: 39-45
        • Moumjid N.
        • Charles C.
        • Morelle M.
        • Gafni A.
        • Brémond A.
        • Whelan T.
        • Carrère M.O.
        The statutory duty of physicians to inform patients versus unmet patients’ information needs: the case of breast cancer in France.
        Health Policy. 2009; 91: 162-173
      16. Durif-Bruckert C, Roux P, Morelle M, Faure C, Mignotte M, Moumjid N. Shared decision making in medical encounters regarding breast cancer treatment : The contribution of methodological triangulation. Eur J Cancer Care. 2014 Jul 18.

      17. Moumjid N, Durif-Bruckert C, Beurrier N, Chopin C, Faure C. Shared decision-making in early breast cancer: a routine clinical practice 10 years after. Ongoing study, 2017.

        • Moumjid N.
        • Carrère M.O.
        • Charavel M.
        • Bremond A.
        Clinical issues in shared decision-making applied to breast cancer.
        Health Expect. 2003; 6: 222-227
        • Soum-Pouyalet F.
        • Regnier V.
        • Querre M.
        • Jacquin J.P.
        • Hubert A.
        • Debled M.
        Influence of social and cultural patterns on decision-making in oncology.
        Bull Cancer. 2009 Jun; 96: 733-739https://doi.org/10.1684/bdc.2009.0882
        • Nguyen F.
        • Moumjid N.
        • Charles C.
        • Gafni A.
        • Whelan T.
        • Carrère M.O.
        Treatment decision-making in the medical encounter: comparing the attitudes ofFrench surgeons and their patients in breast cancer care.
        Patient Educ Couns. 2014 Feb; 94: 230-237
      18. Bouhnik AB, Moumjid N, Protière C. L’implication des patients dans les choix des traitements in: La vie deux ans après le diagnostic de cancer. La Documentation Française, Paris; 2008, p. 123-136.

        • Protière C.
        • Moumjid N.
        • Bouhnik A.D.
        • Le Coroller-Soriano A.G.
        • Moatti J.P.
        Heterogeneity of cancer patient information-seeking behaviors.
        Med Decision-Making. 2012 Mar-Apr; 32: 362-375
      19. Rapport La vie deux ans après un diagnostic de cancer. De l’annonce à l’après cancer. Deuxième enquête. Collection Etat et enquêtes. Institut National du Cancer, juin 2014.

        • Bourmaud A.
        • Soler-Michel P.
        • Oriol M.
        • Regnier V.
        • Tinquaut F.
        • Nourissat A.
        • Bremond A.
        • Moumjid N.
        • Chauvin F.
        Decision aid on breast cancer screening reduces attendance rate: results of a large-scale, randomized, controlled study by the DECIDEO group.
        Oncotarget. 2016 Mar 15; 7: 12885-12892
        • Elwyn G.
        • Barr P.J.
        • Grande S.W.
        • Thompson R.
        • Walsh T.
        • Ozanne E.M.
        Developing CollaboRATE: a fast and frugal patient-reported measure of shared decision making in clinical encounters.
        Patient Educ Couns. 2013 Oct; 93: 102-107
      20. Mancini J. Ousseine Y, Bouhnik AD, Smith A First validation of the French version of CollaboRATE: a patient reported measure of shared decision-making process. Oral presentation, International Shared Decision-Making Conference, Lyon, 2017.

      21. Godard J. La décision partagée à l’épreuve des faits. Enquête « Le généraliste » auprès des médecins généralistes. Présentaion orale, Rencontres de la Cancérologie Française, Paris, Décembre 2016.

      22. Vivo M. La decision médicale est-elle réellement partagée en 2014? Etat des lieux en médecine générale. Une enquête qualitative. Thesis in Medicine, 2014, France.

      23. EACH French speaking seminar: Communication in healthcare, Lyon, October 2016.

      24. FREeDOM Collaboration- Website under construction (FREeDOM.univ-lyon1.fr), France, 2017.

      25. Davis K. Mirror, Mirror on the wall, 2014 Update: How the US system health care system compares internationaly. Commonwealth Fund, 2014.

      26. Diouf NT, Menear M, Robitaille H, Painchaud Guérard G, Légaré F. Training health professionals in shared decision making: Update of an international environmental scan. Patient Educ Couns. 2016 Nov;99(11):1753-1758. doi: 10.1016/j.pec.2016.06.008.

      27. https://pactem.hypotheses.org, accessed April 2017.

      28. http://etincelledusoin.com, accessed April 2017.